Monday, 10 July 2017

My Psychosis and me part two: The beginning of my madness.

Trigger warning: please be aware that this blog post contains descriptions of my darkest times and descriptions of my birth story,  if you don't want to read personal details about me or feel you might be triggered by its content then please read no further, this is a very honest account.

Part two: The beginning of my madness.

It's taken me more than two weeks to write this blog post, editing and re-editing, how much to share? What to say? Is it too much? Is anyone even interested? I was reminded yesterday after reading an inspiring PP blog that the reason I'm passionate about writing these blog posts of my own story is to raise awareness of Postpartum Psychosis, because if nobody is talking about it then how are you or other people supposed to realise that something out of the ordinary is happening to you? who can flag up those warning symptoms in order to keep you safe? It is an illness that very quickly spirals out of control, the longer it is left the more psychotic, distressed and dangerous you can become to both your own and other people's health.

 My theory is that the more people that know about it the more chance that women suffering from it can quickly get the appropriate care that they seriously need. I need to do everything I can in my power to help other women not go through such a traumatic time.

So here goes:

My gorgeously perfect daughter was born at 2am on valentines day 2016, I was categorically exhausted, I
 had an epic build-up to this point with days and days of early labour pains after my waters broke prematurely, an induction (which was delayed due to an emergency), a failed forced epidural (delayed due to emergency), then finally a lot of bleeding after giving birth and plenty of medical interventions which I hadn't realised I would find traumatic.

All of those unnecessary delays added on top of the fact I had not slept for more than a couple of hours in about 10-20 days. I was already seriously sleep deprived before the birth due to immense pain in my hips at night. This seriously toxic mixture of severe sleep deprivation and post-birth hormones caused my mind to become an open vessel for all nightmarish thoughts and feelings possible. 

Unfortunately we had to stay in the hospital a few nights because I was having intravenous antibiotics due to a high-temperature and suspected infection. Both of my hands had cannulas (two in one side!!) and I had a catheter, which I found incredibly restrictive and invasive, because of this I just couldn't hold my baby properly or comfortably and breast feeding was therefore impossible! I became obsessed with pumping or hand expressing for her, it felt like it was the only thing I could do to help her as she was loosing weight and my quest to breastfeed just didn't seem possible, every time I tried it was just so difficult.

 The midwives were aware I was exhausted and took my daughter to their office at night to try and help me get some rest but I just couldn't sleep at all, I've always been a bad sleeper and struggled in places that were not my own bed, my neighbour snored very loudly and if it wasn't her it was a baby or a mother crying that kept me awake. I tried ear plugs and an eye mask but the vacuous silence and feeling of being cut off was when I started to notice my racing thoughts.

 I believe I was acting strangely from day two or three, I could not sleep at all, my thoughts were racing, I became uncharacteristicslly free of inhibitions and started to get help from staff for other women on the post-natal ward when they were ringing their buzzers repeatedly and getting no response, it was so under-staffed the midwives barely had a moment for anyone but it was definitely not appropriate that I was supporting them. I even hallucinated during the night and convinced myself that my daughter was going to die (I told a healthcare assistant about this happening but nobody flagged it up as worrying!).

Once possible I was given a side room and my partner could stay the night. My moods frequently fluctuated between a buzzy and hyperactive high and feeling absolutely rock bottom and exhausted, I just wanted to get home, I thought that there I would be able to sleep and that was all I needed, so I jumped through all the hoops to do so, telling them that I was absolutely fine even though I felt awful.

My partner had noticed that I was different, behaving out of character and using a really nasty tone of voice with him (something I just wouldn't  do) he wasn't at any point asked how he thought I was doing and so he figured I was just a tired new mum. We eventually got discharged to come home, a friend gave us a lift in her car, I remember everything feeling incredibly surreal, I literally felt like I was the baby in the back seat of the car whilst my partner and good friend were the parents in the front.

It took until day 7 for my increasing irratic behaviour to be taken seriously enough for intervention. All of my symptoms had exacerbated, everything felt quite strange but I somehow convinced myself that this was just being a new mum! I started having horrible delusions about different people doing me harm, one such delusion was that I was convinced that my partner was trying to poison and imprison me, this is something he would never ever do, he is such an amazing supportive partner and this was clearly a sign of how warped my mind had become!

 I was in a manic energised state, suffering extreme paranoia and complete insomnia. I even sometimes believed that my daughter wasn't born yet. My partner said that I would repeatedly ask him the same question again and again, even when he had just answered me. I remember obsessively getting up at night on my own to try and pump more milk from my glowing medela machine.

I would also find time at night to obsessively write my delusional ideas down, I remember knowing that 'things got darker at night' and dreading the build up to bedtime. I was writing scribbled notes all over my birth plan papers and anything else I could find so that I would not forget the things that I thought were happening and so I could tell the midwives the next day, this writing became habitual and something that I believe may have helped me in recovery.

My sensory experience of the world became very very heightened, I became acutely aware of light and sound both inside and outside the house, I remember the boiler clicking on and off all night as I secretly switching the heating on high at night. I remember all the sounds that I heard every morning when the sun came up, birds chirping, a motorbike revving up, a dog barking, these sounds all happened every day in exactly the same order, it was like a pattern of sound on a loop!

 The mornings became strangely euphoric after nighttimes of complete terror, I remember taking a photo of the beautiful morning light through our curtains before anyone else was up, to me it was an amazingly bright, glowing, warm scene with striking vivid orangey tones, I look back at the image now and the tones are really not all that glowy:

I had daily visits at home from midwives who could tell that something was going on with me and so were desperately trying to get me to sleep, including giving me drugs that would knock out an elephant, after taking those I managed just two hours kip! It was that day that I thought everyone was turning against me, I felt like they were hiding something from me (and of course in a way they were, they knew I was ill!).

That evening my partner called the crisis team for the second time and described what was going on, I snatched the phone off of him to speak to them too, and by then things had got to a point were I was constantly hearing voices and happy to tell them that, I was also convinced my partner was a bad man that I needed to escape from, It was then that a plan was formed for me to be taken to a&e in an ambulance.

Imagine all of your worst ever nightmares coming true, not knowing who you are; questioning those loved ones around you- and thinking that you or they are going to seriously harm yourself or your baby. This was my experience of PP, I lost all trust in everyone including myself and I thought I would never find my way back. 
The wait in A&E was just horrifying, a close friend of mine had come along with me in the ambulance and she was amazing, I am so lucky to have such a supportive and non-judgemental friend, I owe her the world! I was petrified of everyone around me in the hospital, it felt as though I was in a TV set from casualty, like everyone was an actor, but evil and out to get me! At this point I had some insight and I knew I was unwell, apparently I  began to ask my friend to remember events for me as I knew I would forget! However I soon was delusional again and I started to get up and randomly wonder down corridors of the hospital trying to get away from the situation but it just got worse, everyone was someone I knew, but an evil version of them! 

My friend told me that because I kept wondering about I was finally given a bed with curtains and from then on my memory of events in reality are completely gone, I was completely in another world; the many counter contradictions of my very lost mind meant that I actually believed I was in labour and having contractions! 

I thought my partner was there, and I was secretly telling doctors and nurses that he wanted to kill me and my baby so I was trying to hide the contractions and tell him I was fine in order to get him arrested and taken away. I was pointing to a scribbled note written in black marker pen on my hand that said "my partner tried to poison me with red wine and kill my baby" nonsense! I also vaguely remember thinking that I was in a coma, that I could not talk but could only use Sign language to communicate.

After this I don't remember much, apart from maybe the staff were wearing fluorescent yellow clothes! (I've no idea if this is true or not!) I would love to see my medical notes from this point in time to see what was really going on, I want to file a data protection act request for them, I'm going to start the process of that very soon.

I'll stop here as the in the next post I will write about my experience of the acute adult psychiatric ward. Please note that I am recovered now and very much out of this dark place, just to give a little hope to the end of this horrid fearful post!

1 comment:

  1. This is a very powerful piece of writing and very brave to be so openly candid, it has made me cry and immensely increased my insight and awareness of how vulnerable women are after giving birth and warning signs to look out for. I gave birth last year and am fortunate in that I didn't develop any mental health concerns after giving birth apart from the raging hormones and sudden urges to cry which I only knew to expect thanks to friends warning me. But a lot of your experience does mirror my own so closely, showing me how easy it is for anyone to slip into trouble and also highlights potential issues that maybe should be reconsidered in the nature of aftercare following giving birth. I too struggled with sleep also suffering insomnia and after my 3 day hospital stay I had maybe managed 6 hours of sleep, I too was trapped in bed with cannulas and a catheter following an emergency c section. It's so hard when you cannot get up to comfort your baby when they cry or need feeding and instead have to call and wait for a midwife to come to you just to pass you your baby! The emotional distress of hearing your baby cry and not being physically able to get to them is immense. I was on morphine based pain relief which was making me feel fuzzy headed and slightly removed from myself as though the world was in slow motion, again showing how vulnerable a position we can find ourselves in following birth.

    I really feel that a partner should be allowed to stay over night with new mums in hospital, especially for a new mum who is trapped in bed rigged up to drips and a catheter. As well as being a real source of emotional support for the new
    mum, it would relieve the pressure on midwives to respond to calls to help the mums who cannot get out of bed to pick up their crying baby, or cannot go and get themselves a drink of water or just need comforting because they're all alone in a hospital bed with a newborn baby not really having a clue if they're looking after their new baby in the right way.

    Thank you for sharing your experience.